Five years. Five years, I’ve struggle to explain the invisible. If you saw me in a booth at your local diner drinking coffee and enjoying breakfast, you’d say I look normal. “He’s nothing more than an overweight, bald man stuffing his face.” You can’t see the blood disease that lies dormant in my veins. You can’t see the broken leg, cracked knee cap, or fractured hip. You can’t see the never-ending pain pulsing through my body.
You can’t possible understand how each moment of my day/week/month needs to be planned and scheduled. Most people just get up and go. They know not of restraints or limits of energy. They know not of the invisible diseases, aches, pains, etc., that limit so many people.
Today, I was introduced to The Spoon Theory written by Christine Miserandino. I thank Raine Vollor for the introduction. I repeat. Five years, I spent trying to explain something, which Ms. Miserandino writes about so easily. She lives with Lupus and found herself trying to explain her chronic pain and daily routine to her best friend. Hence, she created the Spoon Theory. The theory based on Lupus can easily be used for cancer, Rheumatoid Arthritis, Chronic Fatigue Syndrome and many more.
Attached is a link to her article. I found solace in her words. When you hear me referencing “spoons” for now on, you’ll know why. It will be our inside joke.
http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
PS. There are no surgical updates as the date was moved to Friday October 4th.
Cheers!
Thursday, September 5, 2013
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I'm glad that the spoon theory will help you explain your challenges.
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